Anyone Here with MS

[thereaper]

So, obviously super early in the process. This was all done after neurologist visit, mri confirmed “longitudinally extensive lesion on craniocervical junction”. Then, spinal tap confirmed their suspicions. I’m going to Columbia Presbyterian in NYC to see a specialist there who will be my treating physician and prescribe medicines. I like my neurologist, and I respect that he had the balls to say “this is out of my wheelhouse, go see Dr Rebecca Farber”. Look her up, seriously lol she’s the head of the MS center at Columbia, I couldn’t be luckier.

Funny enough, I’ve have a black spot in my left eye for roughly 6-7 years. I completely ignored it. I thought it was from staring at my phone all day. Turns out, it was the beginning of all of this. It wasn’t until my first real full body “attack” in December that I was smart enough to seek treatment. Though, that treatment also happened to catch a congenital heart defect as well as another heart disease. I’m also seeing a surgeon at Columbia for that. Back to back days this week lol wish me luck.

Though, from what I’ve been told by my neurologist, I’ll likely be doing IV infusions every few months. I hope to never have another attack like the one I did, I’m still recovering, though I guess my vision will forever be worsened and my balance problems are here to stay.

Long story short…listen to your damn body, even if it’s as simple as a small black spot in your vision. Get it checked out. I let a disease progress for over 6 years because “eh it’s nothing”.

Don’t be to hard on yourself my man! I know that’s much easier said than done. And he’ll yeah man my Doc is Lindsey Lakin. She runs a few MS societies out my way so I’m glad we’re both seeing top people in the field!

 

[gib68sg]

Don’t be to hard on yourself my man! I know that’s much easier said than done. And he’ll yeah man my Doc is Lindsey Lakin. She runs a few MS societies out my way so I’m glad we’re both seeing top people in the field!

Appreciate you brotha. Wanna hear the worst part? My most recent bloods since I obviously came off of EVERYTHING came back lmao. All of my health markers (outside of CNS, CSF, and some inflammatory markers) came back perfect. Cholesterol, liver, triglycerides, etc. Then there’s my test lol….total 103, free 7.8. Funny enough, I don’t have the usual low test sides. Fatigue is something I’ve been dealing with, but that’s to be expected with a heart that is struggling with an extra membrane in my left atrium and demyelinating disease. No other low test sides to speak of, libido, etc all still there. Just no energy to speak of.