Can’t shake this Ulcerative Colitis flare up..

[JonnyJHutch]

Hi everyone
I’ve suffered with UC for over 5 years now
I’m in a flare up I just can’t seem to shake.. puts me off competing cause it seems to happen a few weeks in… I can’t seem to bulk as I just can’t get the food in feels like I’m just in no man’s land and it’s starting to get me down
I take Mesalazine daily
At the moment Iv doubled up my meds, am using suppositories daily and pred foam which all usually calms things down but it’s not.. it’s not even like certain foods trigger me some foods can be great then all of a sudden it kicks off again

Do any of you have experience with this? What has worked for you? Any techniques, supplements etc

Any help would be massively appreciated

 

[KingOfSushi]

I’d grab some oral BPC to bring inflammation down

 

[specter]

if i was you i would watch every darn video John Meadows has on youtube about food and how he managed his issues with food and his intestinal/colon issues.

 

[gains4000]

I have terrible digestion issues. I use a lot of supplements and they seem to help:

Mastic gum, slippery elm, DGL chews, probiotics, digestive enzymes, L-glutamine, ginger tea, aloe Vera, raw honey and GHRP6.

 

[Quadlife]

Do you take any fiber currently? I’ve had my entire colon removed, rectum gone most of small intestine gone, ileostomy bag lost 50lb recorded after 3 surgeries all to have lighting strike twice get a blockage to have the bag all over again and 4 more surgeries I’d be happy to help in any way I can

 

[Heath82]

What’s your current diet like?

 

[whacked]

Do you take any fiber currently? I’ve had my entire colon removed, rectum gone most of small intestine gone, ileostomy bag lost 50lb recorded after 3 surgeries all to have lighting strike twice get a blockage to have the bag all over again and 4 more surgeries I’d be happy to help in any way I can

Dang man. Madddd kudos to you!

 

[bbxtreme]

I’d grab some oral BPC to bring inflammation down

I’d add some oral KPV with that.

 

[liv2pb]

damn I am sorry to hear this. I have UC as well and the only thing that helps during a flare is Mesalamine/hydrocortisone enemas. Also, I have to avoid all fake fibers/keto snacks like quest bars/certain sweeteners like erythritol. These are the only diet related things that I notice that makes UC worse. I hope you feel better man. UC makes life almost not worth living

 

[JonnyJHutch]

Do you take any fiber currently? I’ve had my entire colon removed, rectum gone most of small intestine gone, ileostomy bag lost 50lb recorded after 3 surgeries all to have lighting strike twice get a blockage to have the bag all over again and 4 more surgeries I’d be happy to help in any way I can

Jesus mate.. hats off to you brother, that’s no luck at all but I hope you the very best. To be honest I pretty much just stick to rice and chicken mainly but even then I can just flare from no where, I do know certain foods trigger me, diary, onions, garlic, red meat

I don’t supplement with fibre or anything at the moment?

Do you recommend any supplements I should or shouldn’t be taking?

 

[JonnyJHutch]

damn I am sorry to hear this. I have UC as well and the only thing that helps during a flare is Mesalamine/hydrocortisone enemas. Also, I have to avoid all fake fibers/keto snacks like quest bars/certain sweeteners like erythritol. These are the only diet related things that I notice that makes UC worse. I hope you feel better man. UC makes life almost not worth living

It can be a nightmare mate can’t it, makes getting all the calories down to put muscle on damn near impossible most of the time, how do you manage? Yea I take mesalamine daily, I’ve doubled my dose and using suppositories and prednisone enema and still can’t get out of this one it’s been over a month now, worst I’ve had in years

 

[JonnyJHutch]

I’d add some oral KPV with that.

I’ve just ordered some BPC plus kpv mate thank you

 

[JonnyJHutch]

What’s your current diet like?

I pretty much live on rice and chicken at the moment that’s what I switch to when in a flare up but it’s just not seeming to work this time

When in remission I get abit more adventurous, oats, some red meat but I don’t eat just anything I know some foods are for certain triggers for me

 

[JonnyJHutch]

did any of you find that certain steroid compounds could trigger you off more than others or not at all? Thank you
I do take gh as I read that can help heal the mucosa stomach wall

 

[specter]

did any of you find that certain steroid compounds could trigger you off more than others or not at all? Thank you
I do take gh as I read that can help heal the mucosa stomach wall

My buddy with UCI gets massive attacks from tren and orals.

 

[bbxtreme]

I’ve just ordered some BPC plus kpv mate thank you

The other things I would use consistently would be:

Glutamine 20-30g daily
Digestive Enzymes (with betaine)
Mastic Gum (Jarrow)
Colostrum powder (before bed)

Limit inflammation in the gut and anything that would irritate it. High protein can do this over time hence the enzymes with betain. Avoid orals and tren as mentioned above and you should have a good foundation.

 

[liv2pb]

It can be a nightmare mate can’t it, makes getting all the calories down to put muscle on damn near impossible most of the time, how do you manage? Yea I take mesalamine daily, I’ve doubled my dose and using suppositories and prednisone enema and still can’t get out of this one it’s been over a month now, worst I’ve had in years

You might need the actual mesalamine enimas (rowasa) and ask for hydrocortisone enimas.

I manage the calories by just forcing myself. I've tried every diet and did an elimination diet for an entire year. I've found that diet doesn't play a huge role. I wasted so much time fucking around with different diets. I even cut out protein shakes for an entire year. That shit sucked. It's hard to be shitting blood 15+ times a day and still eat lol

 

[JonnyJHutch]

My buddy with UCI gets massive attacks from tren and orals.

Yes mate as soon as I try any orals within a couple of days my stomach starts to churn and the sulphur burps start.. usually a start sign it’s beginning to flare and they are disgusting

 

[JonnyJHutch]

The other things I would use consistently would be:

Glutamine 20-30g daily
Digestive Enzymes (with betaine)
Mastic Gum (Jarrow)
Colostrum powder (before bed)

Limit inflammation in the gut and anything that would irritate it. High protein can do this over time hence the enzymes with betain. Avoid orals and tren as mentioned above and you should have a good foundation.

Thank you mate il get straight onto those aswell

 

[JonnyJHutch]

You might need the actual mesalamine enimas (rowasa) and ask for hydrocortisone enimas.

I manage the calories by just forcing myself. I've tried every diet and did an elimination diet for an entire year. I've found that diet doesn't play a huge role. I wasted so much time fucking around with different diets. I even cut out protein shakes for an entire year. That shit sucked. It's hard to be shitting blood 15+ times a day and still eat lol

You almost feel like it’s a waste of time eating though cause as soon as I eat something I’m straight to the toilet shitting everything out! I’m trying to it’s a nightmare getting anything through the nhs. I’ve just ordered prednisone tablets from united pharmacies