Can’t shake this Ulcerative Colitis flare up..

[richie34]

I've taken to managing my own meds as like you say NHS rubbish! Yep prednisone only thing that stops my flares (crohns disease) I avoid orals and 19nors also. Wish could help more but yeah don't know what HD do without prednisone. Nearly forgot but I avoid gluten also. Hope things settle down soon

 

[JonnyJHutch]

I've taken to managing my own meds as like you say NHS rubbish! Yep prednisone only thing that stops my flares (crohns disease) I avoid orals and 19nors also. Wish could help more but yeah don't know what HD do without prednisone. Nearly forgot but I avoid gluten also. Hope things settle down soon

Thanks bro! Why do you avoid 19 nors? Tren kills my stomach but never really given nandrolone a fair run since being diagnosed.. I have came across a few post where people using primo were having stomach and digestion issues.. does nandrolone cause you to flare? Exactly mate I’m not waiting around for them so I’ve just ordered myself.. historically it doesn’t take long for prednisone to start to work for me. I’ve ordered the 40mg tabs

 

[richie34]

Well of the injectables the only ones I've had stomach issues was decca which flared me after about 3 weeks , have had success with npp but only 300mg/week and even then the mental sides were too much after couple months. I should add that I figured out a while back that keeping e2 in check and also trying to avoid big swings in hormones kept me pretty safe and so I stick with test and a dht to keep e2 under control. So far I've also been ok with ment added to low dose test

 

[Catteni]

Hi everyone
I’ve suffered with UC for over 5 years now
I’m in a flare up I just can’t seem to shake.. puts me off competing cause it seems to happen a few weeks in… I can’t seem to bulk as I just can’t get the food in feels like I’m just in no man’s land and it’s starting to get me down
I take Mesalazine daily
At the moment Iv doubled up my meds, am using suppositories daily and pred foam which all usually calms things down but it’s not.. it’s not even like certain foods trigger me some foods can be great then all of a sudden it kicks off again

Do any of you have experience with this? What has worked for you? Any techniques, supplements etc

Any help would be massively appreciated

Sorry to hear man. Worked in tertiary IBD clinic for 5 years at Mayo Clinic.

What does your following GI say? Are you taking anything else besides Mesalamine(ASA) like an immunosuppressant/modulator, or a biologic? Biologic therapy is the strongest treatment option. What about a recent catscan (CTE), MRI (MRE), or Colonoscopy?

L-Glutamine
Bpc-157
Kpv
LL-37 may help.

Has anything you've done before helped manage your flares? Or the diarrhea specifically ever? If typical anti-diarrheal medications have been ineffective they could trial a medication to slow down you digestion (gastric motility).

Identify trigger foods best you can but sounds like you've done that and are even flaring on bland chicken-rice diet.

Hope the flare clears up.

 

[buzzbomb138]

What does your following GI say? Are you taking anything else besides Mesalamine(ASA) like an immunosuppressant/modulator, or a biologic? Biologic therapy is the strongest treatment option. What about a recent catscan (CTE), MRI (MRE), or Colonoscopy?

^^^this. i was gonna say u need to get on a biologic, S1P drug or small molecule. ive had UC for 15 years and with vedolizumab/Entyvio and XR mesalamine tablets have kept me in a solid remission maintenance with only small bumps in the road that budesonide/Uceris (locally acting steroid pill like ur prednisone enemas) solves pretty easily for the last 8 yrs. it literally gives u ur life back. i actually just got over a small flare for the last month from multiple stressful events at once and the Uceris solved it after about 2 wks and now im back to solid poos again lol.

u need to get with ur GI and discuss one of these drugs:
-biologics: Entyvio, Stelara, or Omvoh (work great but have to be IV'd or self injected at 4-8 wk intervals)
-S1P: Zeposia or Velsipity (newer and possibly better class of drugs than the biologics and a convenient pill)
-small molecules: Xeljanz or Rinvoq (strongest and last stop before colectomy surgery, can stop a flare in days/wks but has the highest side effect profile of blood clots, lipids, opportunistic infections from immunosuppression, prob not the best option for our AAS using lifestyle unless it becomes the last resort before surgery)

one of these is the next step as just mesalamine and steroids aint cutting it anymore for u, u need something thatll induce and maintain long term remission. i wouldnt bother with the older immunosuppresant drugs like methotrexate or 6-MP either, too many sides and way better options nowadays. i know the NHS sucks as for waits and all that, but see if u can get to a GI and discuss one of these therapies cuz theyll make a world of difference. they have in my life and i thank god/science/creator/whatever everyday they exist lol.

 

[Catteni]

^^^this. i was gonna say u need to get on a biologic, S1P drug or small molecule. ive had UC for 15 years and with vedolizumab/Entyvio and XR mesalamine tablets have kept me in a solid remission maintenance with only small bumps in the road that budesonide/Uceris (locally acting steroid pill like ur prednisone enemas) solves pretty easily for the last 8 yrs. it literally gives u ur life back. i actually just got over a small flare for the last month from multiple stressful events at once and the Uceris solved it after about 2 wks and now im back to solid poos again lol.

u need to get with ur GI and discuss one of these drugs:
-biologics: Entyvio, Stelara, or Omvoh (work great but have to be IV'd or self injected at 4-8 wk intervals)
-S1P: Zeposia or Velsipity (newer and possibly better class of drugs than the biologics and a convenient pill)
-small molecules: Xeljanz or Rinvoq (strongest and last stop before colectomy surgery, can stop a flare in days/wks but has the highest side effect profile of blood clots, lipids, opportunistic infections from immunosuppression, prob not the best option for our AAS using lifestyle unless it becomes the last resort before surgery)

one of these is the next step as just mesalamine and steroids aint cutting it anymore for u, u need something thatll induce and maintain long term remission. i wouldnt bother with the older immunosuppresant drugs like methotrexate or 6-MP either, too many sides and way better options nowadays. i know the NHS sucks as for waits and all that, but see if u can get to a GI and discuss one of these therapies cuz theyll make a world of difference. they have in my life and i thank god/science/creator/whatever everyday they exist lol.

Best chance at Remission in my healthcare opinion. Do you have decent insurance? Are you close to any tertiary/specialty medical centers?

 

[Catteni]

^^^this. i was gonna say u need to get on a biologic, S1P drug or small molecule. ive had UC for 15 years and with vedolizumab/Entyvio and XR mesalamine tablets have kept me in a solid remission maintenance with only small bumps in the road that budesonide/Uceris (locally acting steroid pill like ur prednisone enemas) solves pretty easily for the last 8 yrs. it literally gives u ur life back. i actually just got over a small flare for the last month from multiple stressful events at once and the Uceris solved it after about 2 wks and now im back to solid poos again lol.

u need to get with ur GI and discuss one of these drugs:
-biologics: Entyvio, Stelara, or Omvoh (work great but have to be IV'd or self injected at 4-8 wk intervals)
-S1P: Zeposia or Velsipity (newer and possibly better class of drugs than the biologics and a convenient pill)
-small molecules: Xeljanz or Rinvoq (strongest and last stop before colectomy surgery, can stop a flare in days/wks but has the highest side effect profile of blood clots, lipids, opportunistic infections from immunosuppression, prob not the best option for our AAS using lifestyle unless it becomes the last resort before surgery)

one of these is the next step as just mesalamine and steroids aint cutting it anymore for u, u need something thatll induce and maintain long term remission. i wouldnt bother with the older immunosuppresant drugs like methotrexate or 6-MP either, too many sides and way better options nowadays. i know the NHS sucks as for waits and all that, but see if u can get to a GI and discuss one of these therapies cuz theyll make a world of difference. they have in my life and i thank god/science/creator/whatever everyday they exist lol.

Everything he is saying is SPOT ON.

 

[ScoobyPrep]

I work with clients with UC and put it in remission just recently helpd babybirdphysique on IG ask him he was bad shitting blood 19x a day

Its an autoimmune condition you must stamp out 3 buckets stress, inflammation and leaky gut/gut permeability

All IC has a SIBO component so i start with a stool sample so i know what bugs i need to kill off

I teach you to calm teh body through proper meditation and stress relieving techniques like box breathing, cold plung or cold showers

i use proper peptides like KPV (anti microbial), Larazotide (to seal the gut via tight junction repair) and LL 37 (breaks down biofilms) all combined with proper herbal killers.

Reta low low dosed like .75mg a week is money for this as it lowers IL6 and balances Th17 both push auto immune conditions.

Its work but can be put into remission for good.

You wont solve this continuing to push to build muscle you need to pull training back and focus on lowering stress/cortisol etc

once in remission then set up a plan that allows you to progress but do things differently.

need help let me know

 

[cal]

Hi everyone
I’ve suffered with UC for over 5 years now
I’m in a flare up I just can’t seem to shake.. puts me off competing cause it seems to happen a few weeks in… I can’t seem to bulk as I just can’t get the food in feels like I’m just in no man’s land and it’s starting to get me down
I take Mesalazine daily
At the moment Iv doubled up my meds, am using suppositories daily and pred foam which all usually calms things down but it’s not.. it’s not even like certain foods trigger me some foods can be great then all of a sudden it kicks off again

Do any of you have experience with this? What has worked for you? Any techniques, supplements etc

Any help would be massively appreciated

i had colitis very bad and eventually had to have surgery...j pouch. extremely difficult recovery and surgery and 10 years later still experimenting with diet etc.

definitely can't bodybuild at the same level anymore as I simply can't eat enoough...

 

[cal]

I work with clients with UC and put it in remission just recently helpd babybirdphysique on IG ask him he was bad shitting blood 19x a day

Its an autoimmune condition you must stamp out 3 buckets stress, inflammation and leaky gut/gut permeability

All IC has a SIBO component so i start with a stool sample so i know what bugs i need to kill off

I teach you to calm teh body through proper meditation and stress relieving techniques like box breathing, cold plung or cold showers

i use proper peptides like KPV (anti microbial), Larazotide (to seal the gut via tight junction repair) and LL 37 (breaks down biofilms) all combined with proper herbal killers.

Reta low low dosed like .75mg a week is money for this as it lowers IL6 and balances Th17 both push auto immune conditions.

Its work but can be put into remission for good.

You wont solve this continuing to push to build muscle you need to pull training back and focus on lowering stress/cortisol etc

once in remission then set up a plan that allows you to progress but do things differently.

need help let me know

19 x a day... i was at several points shitting blood 50 plus times a day.

 

[JonnyJHutch]

I work with clients with UC and put it in remission just recently helpd babybirdphysique on IG ask him he was bad shitting blood 19x a day

Its an autoimmune condition you must stamp out 3 buckets stress, inflammation and leaky gut/gut permeability

All IC has a SIBO component so i start with a stool sample so i know what bugs i need to kill off

I teach you to calm teh body through proper meditation and stress relieving techniques like box breathing, cold plung or cold showers

i use proper peptides like KPV (anti microbial), Larazotide (to seal the gut via tight junction repair) and LL 37 (breaks down biofilms) all combined with proper herbal killers.

Reta low low dosed like .75mg a week is money for this as it lowers IL6 and balances Th17 both push auto immune conditions.

Its work but can be put into remission for good.

You wont solve this continuing to push to build muscle you need to pull training back and focus on lowering stress/cortisol etc

once in remission then set up a plan that allows you to progress but do things differently.

need help let me know

Unreal information that mate thank you

I’ve just got
BPC 157 with kpv
Tb500
Glutathione
Methylene blue
Gluatamine

Any others I need I will get? My diet right now is basically chicken and rice

I’ve not had bloody stools for awhile but it’s more so the regular loose stools and the fear that nothing isn’t being digested or utilised properly? Then it’s eating the quantity of food needed to gain muscle

 

[goloco]

Unreal information that mate thank you

I’ve just got
BPC 157 with kpv
Tb500
Glutathione
Methylene blue
Gluatamine

Any others I need I will get? My diet right now is basically chicken and rice

I’ve not had bloody stools for awhile but it’s more so the regular loose stools and the fear that nothing isn’t being digested or utilised properly? Then it’s eating the quantity of food needed to gain muscle

Hope thing are better brother

Do you have an update with your supplements and overall challenge?

 

[bensif]

I see a lot of mention about various drugs (whether prescription medication or not) here. However little mention of food.

The fastest way into remission is a complete fast (24 hours), followed by a water fast, then a reintroduction of one macro nutrient at a time beginning with protein based foods. One of the biggest reasons for continued flare ups is stool in the bowels. Most UC sufferers are the large bowel, usually sigmoid and descending colon (unless you're unlucky). White fish only will produce little to no residue allowing you to eat without continuing to irritate the bowel. Fats are usually one of the biggest contributors.

I'd also highly recommend rectal foam based prednisone. It doesn't cause all the issues oral prednisone can cause and can bring about very fast relief if you're bleeding heavily. Who doesn't love something up their bum (all the Crohns and UC guys will know what I am talking about).

The purpose of the fasting method is 24 hours of relief (nil by mouth), rehydration, then a low residue diet aimed at giving your body what it immediately needs without loading the bowels back up. I usually do white fish for 3 days, then add a second protein like boiled chicken breast. I usually then add in white rice (as you've been eating) and honey. I do that for another days before adding in peeled white potato. If that causes no issues after another 7 days I'll add a fat, usually in the form of salmon. Still no fibre at that point. If all is good by day 21 you can start building back up the diet.

There are times when you may be an incredibly bad way and corticosteroids are a must, but usually the above will get you there in 72 hours.

I've had crohns (diagnosed) for the best part of 15 years now. I've been medication free since 2021 (if memory is serving me right) and not had a flare up in almost as long (touch wood).

On a tangent, theres some incredibly interesting research on cigarettes (have a google).

Anyway, I am personally very anti-medication at this point, primarily because mesalazine in particular has been responsible for most cases of CKD in Crohns / UC sufferers. I was never warned (and now know better to read the up medication before I take it) of the risks it poses. As someone else pointed out, as you go up the drug tree and get into the tier 4 meds which are very effective, the side effects also get infinitely worse.

I am labouring that point because if you can control it via diet you will save yourself a lot of issues down the road.

Anyway man, I really hope you are stable now and feeling a little less crappy. Its definitely no fun! Feel for you.

 

[specter]

I see a lot of mention about various drugs (whether prescription medication or not) here. However little mention of food.

The fastest way into remission is a complete fast (24 hours), followed by a water fast, then a reintroduction of one macro nutrient at a time beginning with protein based foods. One of the biggest reasons for continued flare ups is stool in the bowels. Most UC sufferers are the large bowel, usually sigmoid and descending colon (unless you're unlucky). White fish only will produce little to no residue allowing you to eat without continuing to irritate the bowel. Fats are usually one of the biggest contributors.

I'd also highly recommend rectal foam based prednisone. It doesn't cause all the issues oral prednisone can cause and can bring about very fast relief if you're bleeding heavily. Who doesn't love something up their bum (all the Crohns and UC guys will know what I am talking about).

The purpose of the fasting method is 24 hours of relief (nil by mouth), rehydration, then a low residue diet aimed at giving your body what it immediately needs without loading the bowels back up. I usually do white fish for 3 days, then add a second protein like boiled chicken breast. I usually then add in white rice (as you've been eating) and honey. I do that for another days before adding in peeled white potato. If that causes no issues after another 7 days I'll add a fat, usually in the form of salmon. Still no fibre at that point. If all is good by day 21 you can start building back up the diet.

There are times when you may be an incredibly bad way and corticosteroids are a must, but usually the above will get you there in 72 hours.

I've had crohns (diagnosed) for the best part of 15 years now. I've been medication free since 2021 (if memory is serving me right) and not had a flare up in almost as long (touch wood).

On a tangent, theres some incredibly interesting research on cigarettes (have a google).

Anyway, I am personally very anti-medication at this point, primarily because mesalazine in particular has been responsible for most cases of CKD in Crohns / UC sufferers. I was never warned (and now know better to read the up medication before I take it) of the risks it poses. As someone else pointed out, as you go up the drug tree and get into the tier 4 meds which are very effective, the side effects also get infinitely worse.

I am labouring that point because if you can control it via diet you will save yourself a lot of issues down the road.

Anyway man, I really hope you are stable now and feeling a little less crappy. Its definitely no fun! Feel for you.

Wifes aunt did that, she stopped smoking all hell broke loose, she tried everything, then we read cigarettes could be the issue, she started smoking again went right into remission shortly after..