- Oct 6, 2007
Just curious if any of you have been diagnosed with MS. My spine surgeon thinks I have it. He referred me to a neurologist...I'm looking forward to seeing her!
I met a few people with MS. They say the symptoms come and go. The docs I works for would do a brain MRI if they suspect it. Some of the symptoms mimic other issues so sometimes if you have a bunch of spine related issues like numbness and tingling in your limbs they sometimes want to be sure its nothing above and beyond the typical spine symptoms.
I wish you the best. Keep us posted.
Also, these people I met with MS still live good lives but can have some bad days too.
i have a friend in St.Pete who has it and says he's rolled back the symptoms through diet. he swears by that. only thing you don't want to hear is he went all in as a vegetarian and doesn't have that much muscle. but he thinks he's doing great and that's the main thing.
Spinal tap is only way to sure fire diagnose MS. My mother has it as well, over 20 years now and she is now starting to see the bad signs and nerve damage. She's done pretty good for the most part though. She has relapsing remitting type that just turned into progressive after 20 years. After a MS attack it will leave lesions on your brain. That's another way they can tell how fast its progressing
Please google MS misdiagnosis. Several symptoms are similar to lymes. Or other issues. I hope everything works out for you.
I read that, regarding an MRI and spinal tap.
I was reading about some of the other diseases that mimic MS. The main ones were Lupus, Sarcoidosis, Myasthenia Gravis, HTLV-1, Syphilis, Lyme Disease, Vitamin B12 Deficiency and Blood Vessel Problems.
8 Conditions That Mimic Multiple Sclerosis
Bio. From the surgeries you had and stress put on your body you could get spells of increased neurological symptoms from that alone. Don't jump into treatments or different meds. There is nothing wrong with treatments but you don't need to rush into treatments.
Whatever happened with carcinoid stuff?
I know you were waiting forever on the scans and being dicked by insurance.
My brother in law has it, and he had a stem cell treatment.
He still was doing terrible after that kept having seizures and fainting - docs had him on all the latest and greatest MS drugs which have terrible sides.
He finally got some better treatment with a new Neuro when he moved to FL, now he drives and does everything pretty much normally now.
He also eats a diet according to this book written by a doctor with MS
Terry Wahls MD | Defeating Progressive Multiple Sclerosis without Drugs | MS Recovery | Food As Medicine | The official website of Terry Wahls, MD, author and physician who has recovered from secondary progressive multiple sclerosis by using the Wahl
I'm very good about not getting ahead of myself. Even with bad news, I'm usually able to keep calm focus on what the next step is...I'm well researched...I haven't even seen the Neurologist yet and scans will come first and most likely a spinal tap...it will be one step at a time...looking forward to getting the process started.
I asked about it coming from the spine and my doctor, who is a spine specialist, said that the pins and needles jumping around from area to area is a neurological issue, not a spinal issue...it's all about presentation. Having pins in needles in an area of the body, which I've had, is something that can result from the spine but again, not in the fashion it's presenting in now. I also have quite a few of the other MS symptoms and not just recently (hindsight). It took the recent severe episodes and speaking with the doctor to tie together the possibility of MS.
Also, due to the issues with the pins and needles in my face and headaches, I was told I should have my cranial nerve looked at as well and the artery that runs at the base of the skull. I want all of this to be as thorough as possible in order to diagnose or eliminate. Like I said, I'm looking forward to meeting with the neurologist and getting to the bottom of things!
Thanks MG! I had intestine surgery for that in April 2014 and everything has been fine since. I've had to do blood work every two months but things are good there.
I'll definitely check that link out!
get a copy of all your MRI imaging. Ill need mri spine and/or brain with and without contrast. Ill let you know within seconds if its even on the differential.
Once you get it PM me and we will set up a way for me to look at the images for you.