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Do Any Of You Have MS?

Bio

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Just curious if any of you have been diagnosed with MS. My spine surgeon thinks I have it. He referred me to a neurologist...I'm looking forward to seeing her!
 

Bionic

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Bio, praying that they're mistaken! But if not, I feel bad for the MS!
 

chainheart

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i have a friend in St.Pete who has it and says he's rolled back the symptoms through diet. he swears by that. only thing you don't want to hear is he went all in as a vegetarian and doesn't have that much muscle. but he thinks he's doing great and that's the main thing.
 

chemical engineer

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My friends mom has it! It was a many , many years progression ! I'm sure you have researched it. I hope the best for you and he could be wrong!!!!!!!!!
 

chinaboy

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I met a few people with MS. They say the symptoms come and go. The docs I works for would do a brain MRI if they suspect it. Some of the symptoms mimic other issues so sometimes if you have a bunch of spine related issues like numbness and tingling in your limbs they sometimes want to be sure its nothing above and beyond the typical spine symptoms.

I wish you the best. Keep us posted.

Also, these people I met with MS still live good lives but can have some bad days too.
 

fit2grow

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There is this girl that use to go to my gym years ago and had ms. I always was extremely impressed by her. Wishing you the best bio amd you get to the bottom of it soon!
 

Bio

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I met a few people with MS. They say the symptoms come and go. The docs I works for would do a brain MRI if they suspect it. Some of the symptoms mimic other issues so sometimes if you have a bunch of spine related issues like numbness and tingling in your limbs they sometimes want to be sure its nothing above and beyond the typical spine symptoms.

I wish you the best. Keep us posted.

Also, these people I met with MS still live good lives but can have some bad days too.
Exactly! There are different "types" of MS for lack of a better description. The doctor said if I do have it, it would most likely be the type that flares up and goes away.

It's no secret to long time members here that I've had spinal issues for a long time...my entire adult life in fact. Ankylosing Spondylitis runs in my family...I've tested positive for the HLA-B27 gene but not diagnosed with AS. The Rheumatologist saw a fair amount of arthritis in my spine, this was some years ago, and said that was most likely due to having that gene. I was recently imaged again for it and still don't have.

I've had several spinal fusion surgeries...lumbar, Dec 2014 and cervical August 2015. Both surgeries produced great results, especially the lumbar!

The newest symptoms have been a flare up of pins and needles jumping from one spot to another, all over my body...last week it was really intense and awful...it lasted about 5 days with two of the days being really severe. I had some really bad dizzy spells too. I've had similar but much less intense flare ups like this over the years but always attributed them to spinal issues. I've also had some cognitive issues over the last couple of years and wasn't sure if they were possibly attributed the anesthesia...I actually had 4 surgeries over 16 months...the other two were not related to my back. During the same time I was having the cognitive issues, not currently happening, I had trouble enunciating random words. I've had chronic muscle spasms, mainly my back, for 25+ years. I've also had fatigue issues which can also be contributed to chronic back pain. I also get bad upper neck pain which is nothing new, which is what I was currently seeing the doctor for...I get daily headaches and ringing in my ears...good times! LOL!!

Anyway, I'm looking forward to seeing the neurologist and finding out what's going on!
 

jeetsun7

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One of my bosses has it. His diet is horrible and only exacerbates it. I've tried suggesting a diet change, but its like the old saying, you can bring a horse to water, but you can't make him drink.
 

Bio

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i have a friend in St.Pete who has it and says he's rolled back the symptoms through diet. he swears by that. only thing you don't want to hear is he went all in as a vegetarian and doesn't have that much muscle. but he thinks he's doing great and that's the main thing.
No problems with a healthy diet...I have that for the most part now but no meat...the carnivore in me doesn't like that part at all! :D
 

bigguy35

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Spinal tap is only way to sure fire diagnose MS. My mother has it as well, over 20 years now and she is now starting to see the bad signs and nerve damage. She's done pretty good for the most part though. She has relapsing remitting type that just turned into progressive after 20 years. After a MS attack it will leave lesions on your brain. That's another way they can tell how fast its progressing
 

King-kong

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Please google MS misdiagnosis. Several symptoms are similar to lymes. Or other issues. I hope everything works out for you.
 

Bio

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Spinal tap is only way to sure fire diagnose MS. My mother has it as well, over 20 years now and she is now starting to see the bad signs and nerve damage. She's done pretty good for the most part though. She has relapsing remitting type that just turned into progressive after 20 years. After a MS attack it will leave lesions on your brain. That's another way they can tell how fast its progressing
I read that, regarding an MRI and spinal tap.

Please google MS misdiagnosis. Several symptoms are similar to lymes. Or other issues. I hope everything works out for you.
I was reading about some of the other diseases that mimic MS. The main ones were Lupus, Sarcoidosis, Myasthenia Gravis, HTLV-1, Syphilis, Lyme Disease, Vitamin B12 Deficiency and Blood Vessel Problems.

8 Conditions That Mimic Multiple Sclerosis
 

bigguy35

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I read that, regarding an MRI and spinal tap.







I was reading about some of the other diseases that mimic MS. The main ones were Lupus, Sarcoidosis, Myasthenia Gravis, HTLV-1, Syphilis, Lyme Disease, Vitamin B12 Deficiency and Blood Vessel Problems.



8 Conditions That Mimic Multiple Sclerosis


Great point, and my mother also got Lyme disease and it mimicked a lot of her MS symptoms. Sucked for sure. Can't rule out anything and diet is HUGE.
 

chinaboy

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Bio. From the surgeries you had and stress put on your body you could get spells of increased neurological symptoms from that alone. Don't jump into treatments or different meds. There is nothing wrong with treatments but you don't need to rush into treatments.
 

Massive G

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Hey Bio,
Whatever happened with carcinoid stuff?
I know you were waiting forever on the scans and being dicked by insurance.
My brother in law has it, and he had a stem cell treatment.
He still was doing terrible after that kept having seizures and fainting - docs had him on all the latest and greatest MS drugs which have terrible sides.
He finally got some better treatment with a new Neuro when he moved to FL, now he drives and does everything pretty much normally now.

He also eats a diet according to this book written by a doctor with MS

Terry Wahls MD | Defeating Progressive Multiple Sclerosis without Drugs | MS Recovery | Food As Medicine | The official website of Terry Wahls, MD, author and physician who has recovered from secondary progressive multiple sclerosis by using the Wahl
 

Bio

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Bio. From the surgeries you had and stress put on your body you could get spells of increased neurological symptoms from that alone. Don't jump into treatments or different meds. There is nothing wrong with treatments but you don't need to rush into treatments.
I'm very good about not getting ahead of myself. Even with bad news, I'm usually able to keep calm focus on what the next step is...I'm well researched...I haven't even seen the Neurologist yet and scans will come first and most likely a spinal tap...it will be one step at a time...looking forward to getting the process started.

I asked about it coming from the spine and my doctor, who is a spine specialist, said that the pins and needles jumping around from area to area is a neurological issue, not a spinal issue...it's all about presentation. Having pins in needles in an area of the body, which I've had, is something that can result from the spine but again, not in the fashion it's presenting in now. I also have quite a few of the other MS symptoms and not just recently (hindsight). It took the recent severe episodes and speaking with the doctor to tie together the possibility of MS.

Also, due to the issues with the pins and needles in my face and headaches, I was told I should have my cranial nerve looked at as well and the artery that runs at the base of the skull. I want all of this to be as thorough as possible in order to diagnose or eliminate. Like I said, I'm looking forward to meeting with the neurologist and getting to the bottom of things!


Hey Bio,
Whatever happened with carcinoid stuff?
I know you were waiting forever on the scans and being dicked by insurance.
My brother in law has it, and he had a stem cell treatment.
He still was doing terrible after that kept having seizures and fainting - docs had him on all the latest and greatest MS drugs which have terrible sides.
He finally got some better treatment with a new Neuro when he moved to FL, now he drives and does everything pretty much normally now.

He also eats a diet according to this book written by a doctor with MS

Terry Wahls MD | Defeating Progressive Multiple Sclerosis without Drugs | MS Recovery | Food As Medicine | The official website of Terry Wahls, MD, author and physician who has recovered from secondary progressive multiple sclerosis by using the Wahl
Thanks MG! I had intestine surgery for that in April 2014 and everything has been fine since. I've had to do blood work every two months but things are good there.

I'll definitely check that link out!
 

gotgame

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I'm very good about not getting ahead of myself. Even with bad news, I'm usually able to keep calm focus on what the next step is...I'm well researched...I haven't even seen the Neurologist yet and scans will come first and most likely a spinal tap...it will be one step at a time...looking forward to getting the process started.

I asked about it coming from the spine and my doctor, who is a spine specialist, said that the pins and needles jumping around from area to area is a neurological issue, not a spinal issue...it's all about presentation. Having pins in needles in an area of the body, which I've had, is something that can result from the spine but again, not in the fashion it's presenting in now. I also have quite a few of the other MS symptoms and not just recently (hindsight). It took the recent severe episodes and speaking with the doctor to tie together the possibility of MS.

Also, due to the issues with the pins and needles in my face and headaches, I was told I should have my cranial nerve looked at as well and the artery that runs at the base of the skull. I want all of this to be as thorough as possible in order to diagnose or eliminate. Like I said, I'm looking forward to meeting with the neurologist and getting to the bottom of things!




Thanks MG! I had intestine surgery for that in April 2014 and everything has been fine since. I've had to do blood work every two months but things are good there.

I'll definitely check that link out!
Bio,

get a copy of all your MRI imaging. Ill need mri spine and/or brain with and without contrast. Ill let you know within seconds if its even on the differential.

Once you get it PM me and we will set up a way for me to look at the images for you.
 

Bio

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Bio,

get a copy of all your MRI imaging. Ill need mri spine and/or brain with and without contrast. Ill let you know within seconds if its even on the differential.

Once you get it PM me and we will set up a way for me to look at the images for you.
Thanks, I appreciate it! I was going to PM you. I still don't have the date of the appointment yet...hopefully the Neurologist's office calls today...if not I'll call them.
 

LK3

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sorry to hear of your troubles bud.

I have done a bit of research in this area...
if you ever want to chat or get feedback on more none conventional stuff always happy to help if I can.

;)
 

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