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Help!!!Myopathy or Myositis Experiences

dragonfire101

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Sep 25, 2002
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Anyone have any form of myopathy here and still able to lift or exercise. I recentley been diagnosed with some type of myopathy and I'm hoping it is not myositis. I woke up and could not walk or contract any of my muscles. All my muscles feel as i just lifted and that they are all filled with latic acid. Went to the neurologist he ruled out a nerve disorder with a electromyogram (EMG) and my blood work showed my muscle enzymes were highly elavated. I can barely walk. He was asking me if I was taking AAS or any supplements because they could have contamination or chemical solvents that cause an autoimmune response in the muscles. I hoping I just have a viral muscke infection or a chemical response that is cauing this becaus ethere is no cure for myositis disorders. Anyone have any experiences. This really sucks i'm out of work becaus ei can't even walk and i can even hardly get around the house without assisstance. All this on top of my other health issues like my
pitutitory tumor. This by far way worse. At times I stuck sitting on the floor of my home becaus emy muscles won't even contract so I can even stand to walk to the bathroom. I crawl around on my elbows and forearms , bt they start to give out becaus ethey constantly have a pump like weakness like as i just did a 1000 pushups or curls.

Anyone have any imput or experiences or even just talk. Im home all day bored out of my mind. I know I really can't do anything, but wait dor the doctors, but they have not started any treatment. I'm about to go find the real live House. Suppose to be one in N.Y. Its been a week that I'm like this.
 
Last edited:
Hey Dragonfire.
If you're CPK or CK depending on how you want to abbreviate are above 1000 you should be in a hospital on an IV to flush you until you get below the 1000 mark! I have a similar problem. They said it was a muscular myopathy. Had the EMG, showed nothing. Had biopsies. Nothing. Basically medical technology can not diagnosis it yet. Please read my post below. If you have any further questions contact me [email protected]
See my post
http://www.professionalmuscle.com/forums/showpost.php?p=338872&postcount=8
Be careful lifting. Stay away from all gear with this thing!
 
If you're CPK or CK depending on how you want to abbreviate are above 1000 you should be in a hospital on an IV to flush you until you get below the 1000 mark!


My results were over 1300 and the doctor did not seem to concerned with even testing my kidney function. Being sent for a muscle biopsy. Doesn't want me to exercise at all and blamed everything on taking supplements. Says they are not regulated by the FDA and they probably have contaminants in them causing my problem. All I take are BCAA, Glutamine and protein. Seems like he has an agenda against supplements and says there not regulated like FDA approved drugs.
 
I assume you saw a neuro

Did he test or mention Myastinia Gravis,a muscle disorder?Could have been ruled out with the EMG?Dam bro I feel for ya and wish for the best for you....keep us updated!
 
Wanted to bump this post, as this has happened to me a couple different time.

And actually going through this today.. I'm not crawling on the floor but have fell a couple times, and its very hard to get up!

Its very concerning. Has anybody else experienced this? Last time it only affected me for a whole day and went away.
 
Wanted to bump this post, as this has happened to me a couple different time.

And actually going through this today.. I'm not crawling on the floor but have fell a couple times, and its very hard to get up!

Its very concerning. Has anybody else experienced this? Last time it only affected me for a whole day and went away.
I’ve never experienced or known anyone who struggled with this ailment. Damn, it’d be stressful being under any appreciable amount of weight and have your muscles give out though…. This would make me rework all my workouts… Have you ever been diagnosed with any disorder?

Cage
 
I’ve never experienced or known anyone who struggled with this ailment. Damn, it’d be stressful being under any appreciable amount of weight and have your muscles give out though…. This would make me rework all my workouts… Have you ever been diagnosed with any disorder?

Cage
Na man, never! Its only happened a couple times.. I wake up with it and can barley get out of the bed, but it only last about 24 hrs

Its freaky as hell to say the least.. Its almost like your close to paralyzed
 
I'm not 100% sure about this yet.
But I had reccuring rhabdomyolysis - like ten or more times between 2020 - 2023.
Figures stress was causing this - but here's the catch. Almost Everytime this happened i was on nandrolone.
Like I said I'm not 100% sure but for example my last rhabdo was in september on test+nandrolone and after being stressed out by my gf.
I cruised until new years and then i started a contest blast - no issues since then even tho I had some really shitty and stressful days. But no nandrolone in the cycle.

This all might be a coincidence but it would be interesting if you guys were at nandrolone or some other certain compound during these episodes
 
Wanted to bump this post, as this has happened to me a couple different time.

And actually going through this today.. I'm not crawling on the floor but have fell a couple times, and its very hard to get up!

Its very concerning. Has anybody else experienced this? Last time it only affected me for a whole day and went away.
Bro, my friends and doctors who saved me from serious liver problems wrote to me that they saw your post and are able to help you - if you want contact me by PM and I will put you in touch with them
 

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