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My Cancer Battle

Thanks all for the kind words.

Attached are recent labs.

I recently underwent a flow cytometry test along with an ultrasound of the spleen.

Reults as follows:

The specimen contains a mixture of cell types. Among the lymphocytes is a population of phenotypically abnormal B cells accounting for 13% of total cells (98% of B cells, 486 cells/uL). These show monoclonal expression of lambda light chain and also express bright CD19, bright CD20, bright CD200, and partial/variable CD10, but lack CD38 and CD5. In addition, majority of them express CD103, CD25 and bright CD11c. By light scatter, they are medium size. The background polyclonal B cells are noted with retained CD20 expression. The overall pattern is in keeping with the patient's known history of hairy cell leukemia (HCL). Morphologic and moleular correlation is recommended.

The spleen is enlarged measuring up to 17.5 cm. No fluid collection. No abscess. No mass.The spleen measures 17.5 x 5.9 x 7.3 cm.


On a cellular level, a simplistic version of what is occuring is that there is a bad gene in the marrow which is effectively 'printing' bad cells (think sickle cell)
The cells collect in the spleen and circulate through the blood causing WBC, Neutrophils, and platelets to tank.
The system then works in over drive to filter which also involves the liver impacting my lipid panel etc.

What I'm looking at:

Rapamycin- not intended for usage with my cancer however HCL is pretty rare so I'm intrigued

Ivermectin and Fenbendazole- (TY for those that mentioned this. I am aware of the usage of benzimidazoles and the potential success correlated with cancers. The issue for me is that it isnt as much the spread that cant be contained, but the 'printing' of bad cells)

GLP's/Reta?- I feel a bit like I'd be hopping on the latest craze but the metabolic benefits cannot be ignored.
I am considering running .5-1mg ew for the next three months before next BW
(if oncologist says that she doesnt intend to move fwd with another round of Chemo, Cladribine and Rituximab just yet- I see her on the 28th)

DNP- there is research into the use of DNP along with cancer treatment. I have run DNP before though its been many many years (the last thing i did before my career took over my life and before my daughter was intended to be conceived was get as lean as possible knowing I'd likely never pursue the size game again)


I realize that I cant ask for advice here on the cancer specifically as its so unique to my circumstance.

What I would ask is that those with knowledge and who feel so inclined, take a look at my labs and tell me what you might do if cancer wasnt in the equation.

Treat me like a dummy, although I am not and am reasonably well versed in supplemental theraputics, I just want to make sure I'm not missing any approaches.
For example I am also considering lowering my HRT dose despite the fact that test falls in the upper normal ranges as aimed, perhaps its still too high given the cirumstances, and impacting my lipids more than it would otherwise. Important to note that while my estradiol is high, ive rarely used anti estrogens and experienced no estrogen related side effects.
Quazi, Bro I feel ya. Got diagnosed with b cell non-Hodkins Lymphoma. I got mine caught early. Strange story. Im 56, so this was in 2021, I was 51. Had some dildos piss me off, maybe test related, IDK. So I followed them into a parking lot, got out and shoved the driver, about that time, the other guy clubbed me. Skinny, black teeth, methed up fuckers. Anyways lights out. I wake up and the cops are there. I told them I really assaulted them, and they were just protecting themselves, which was true. Off to the hospital I go, per the wife. There they scan my whole body and found a enlarged lymph-node on my spleen. Further tests later on diagnosed it as cancer. No symptom's, no nothing. Maybe a bit tired. Anyways caught early. Did antibodies, chemo, bone marrow transplant (which damn near killed me, got really sick), anywho, two more maintience treatments, and I’m done. Been cancer free since before the bone marrow, and still looking good as of now. Get this damn port out of my chest this summer too. Anyways Bro, I totally feel ya. Its rough. Good luck and hope for the best for you, sincerely.
 
Truly fascinating.
I really would love to hear more about those stories.
Stay blessed
I really don’t want to hijack the OPs post but this may be helpful to somebody. My wife is the one with all the knowledge/sites but a quick search gave me this. Scroll down some and there are tons of cases cited with testimonials from doctors to go along with them. Doesn’t always seem to work for everybody, but definitely worth noting and keeping in mind for just in case.

 
Quazi, Bro I feel ya. Got diagnosed with b cell non-Hodkins Lymphoma. I got mine caught early. Strange story. Im 56, so this was in 2021, I was 51. Had some dildos piss me off, maybe test related, IDK. So I followed them into a parking lot, got out and shoved the driver, about that time, the other guy clubbed me. Skinny, black teeth, methed up fuckers. Anyways lights out. I wake up and the cops are there. I told them I really assaulted them, and they were just protecting themselves, which was true. Off to the hospital I go, per the wife. There they scan my whole body and found a enlarged lymph-node on my spleen. Further tests later on diagnosed it as cancer. No symptom's, no nothing. Maybe a bit tired. Anyways caught early. Did antibodies, chemo, bone marrow transplant (which damn near killed me, got really sick), anywho, two more maintience treatments, and I’m done. Been cancer free since before the bone marrow, and still looking good as of now. Get this damn port out of my chest this summer too. Anyways Bro, I totally feel ya. Its rough. Good luck and hope for the best for you, sincerely.
Jeez man, you're a warrior... Great to see that you're doing better. (After that battle).
 
Quazi, Bro I feel ya. Got diagnosed with b cell non-Hodkins Lymphoma. I got mine caught early. Strange story. Im 56, so this was in 2021, I was 51. Had some dildos piss me off, maybe test related, IDK. So I followed them into a parking lot, got out and shoved the driver, about that time, the other guy clubbed me. Skinny, black teeth, methed up fuckers. Anyways lights out. I wake up and the cops are there. I told them I really assaulted them, and they were just protecting themselves, which was true. Off to the hospital I go, per the wife. There they scan my whole body and found a enlarged lymph-node on my spleen. Further tests later on diagnosed it as cancer. No symptom's, no nothing. Maybe a bit tired. Anyways caught early. Did antibodies, chemo, bone marrow transplant (which damn near killed me, got really sick), anywho, two more maintience treatments, and I’m done. Been cancer free since before the bone marrow, and still looking good as of now. Get this damn port out of my chest this summer too. Anyways Bro, I totally feel ya. Its rough. Good luck and hope for the best for you, sincerely.
So basically, assaulting someone saved your life, LOL. Sorry, couldn't help myself. Glad to hear you are cancer free!
 
I have a friend who is currently on ivermectin and fenbendazole for his cancer. Hoping the stories of it’s effects are true for all.
 
So basically, assaulting someone saved your life, LOL. Sorry, couldn't help myself. Glad to hear you are cancer free!
Facts are facts, and it really did. Made the difference. Caught later, which it would have been, could have just been a case of treating it but not getting it into remission.
 
Facts are facts, and it really did. Made the difference. Caught later, which it would have been, could have just been a case of treating it but not getting it into remission.
Life certainly works in mysterious ways lol. I was 42 when this all started... and again I'm everyone who knows me personally biggest health nut. Someone somewhere sent you to kick ass that day for some reason and would never have been me bc I'm not an asshole lol
 
Thanks all for the kind words.

Attached are recent labs.

I recently underwent a flow cytometry test along with an ultrasound of the spleen.

Reults as follows:

The specimen contains a mixture of cell types. Among the lymphocytes is a population of phenotypically abnormal B cells accounting for 13% of total cells (98% of B cells, 486 cells/uL). These show monoclonal expression of lambda light chain and also express bright CD19, bright CD20, bright CD200, and partial/variable CD10, but lack CD38 and CD5. In addition, majority of them express CD103, CD25 and bright CD11c. By light scatter, they are medium size. The background polyclonal B cells are noted with retained CD20 expression. The overall pattern is in keeping with the patient's known history of hairy cell leukemia (HCL). Morphologic and moleular correlation is recommended.

The spleen is enlarged measuring up to 17.5 cm. No fluid collection. No abscess. No mass.The spleen measures 17.5 x 5.9 x 7.3 cm.


On a cellular level, a simplistic version of what is occuring is that there is a bad gene in the marrow which is effectively 'printing' bad cells (think sickle cell)
The cells collect in the spleen and circulate through the blood causing WBC, Neutrophils, and platelets to tank.
The system then works in over drive to filter which also involves the liver impacting my lipid panel etc.

What I'm looking at:

Rapamycin- not intended for usage with my cancer however HCL is pretty rare so I'm intrigued

Ivermectin and Fenbendazole- (TY for those that mentioned this. I am aware of the usage of benzimidazoles and the potential success correlated with cancers. The issue for me is that it isnt as much the spread that cant be contained, but the 'printing' of bad cells)

GLP's/Reta?- I feel a bit like I'd be hopping on the latest craze but the metabolic benefits cannot be ignored.
I am considering running .5-1mg ew for the next three months before next BW
(if oncologist says that she doesnt intend to move fwd with another round of Chemo, Cladribine and Rituximab just yet- I see her on the 28th)

DNP- there is research into the use of DNP along with cancer treatment. I have run DNP before though its been many many years (the last thing i did before my career took over my life and before my daughter was intended to be conceived was get as lean as possible knowing I'd likely never pursue the size game again)


I realize that I cant ask for advice here on the cancer specifically as its so unique to my circumstance.

What I would ask is that those with knowledge and who feel so inclined, take a look at my labs and tell me what you might do if cancer wasnt in the equation.

Treat me like a dummy, although I am not and am reasonably well versed in supplemental theraputics, I just want to make sure I'm not missing any approaches.
For example I am also considering lowering my HRT dose despite the fact that test falls in the upper normal ranges as aimed, perhaps its still too high given the cirumstances, and impacting my lipids more than it would otherwise. Important to note that while my estradiol is high, ive rarely used anti estrogens and experienced no estrogen related side effects.
Just wanted to bump my previous post... if anyone feels inclined to look at my labs and make suggestions as if I'm doing nothing at all, I'm whiteboarding it to make sure my full attack is on point.
When we completed treatment 2.5 years ago we knew this was inevitable but didnt expect it so soon. If my oncologist says it can wait another 3 months to decide I'm gonna see what if anything moves the needle.
 

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