STEWIE! Or others

[ALLEX]

Stool, urine and blood is the basics. Insist on it.

I don't like to hear about cipro, specially for someone with a stressed liver.

Too many ideas already. Need to wait for results. Good luck.

 

[phatkid77]

Yeah. The cipro was prescribed before the evidence of the angry liver.


Sent from my iPhone using Tapatalk

 

[Stewie]

If her spot test comes back negitive again, I'd make mention of possibly running a EBV serological panel. Which consists of; D early antigen, viral capsid antigen-IgG, viral capsid antigen-IgM and Epstein Barr nuclear antigen.

 

[phatkid77]

Her blood is clotting. So can't get a test? She had texted they took more blood as per above stated reason
This am. They did give her cenfuron(sp). To prevent blood clotting


Sent from my iPhone using Tapatalk

 

[gotgame]

If her spot test comes back negitive again, I'd make mention of possibly running a EBV serological panel. Which consists of; D early antigen, viral capsid antigen-IgG, viral capsid antigen-IgM and Epstein Barr nuclear antigen.

Agreed. Start with common things and then go from there. No need for some of the zebras.

 

[phatkid77]

Just to confirm although I have read you can get again she had mono in high school


Sent from my iPhone using Tapatalk

 

[Stewie]

Just to confirm although I have read you can get again she had mono in high school


Sent from my iPhone using Tapatalk

Yes, once you contract the virus, you have it for life. It can lay dormant for several years. It's also associated with several forms of cancer.

 

[john161]

New Option For Chronic Fatigue Syndrome - Life Extension

read the grey high lighted text.

 

[jcc80]

New Option For Chronic Fatigue Syndrome - Life Extension

read the grey high lighted text.

That's completely new to me... interesting.

Sent from my SAMSUNG-SM-G930A using Tapatalk

 

[phatkid77]

Fack sakes! Still no mono results! Her blood coagulates before they get to test it. Even on blood thinners???
So they're taking fresh blood in the AM as it will go to the health unit first thing.
Good note is her liver values keep dropping. Not much. Like 4 points here and there.
Nurse told me what drawing for in the am. I tried googling but must of screwed up
IBV 1 load time??? Or something.

Anyway. The hospital is becoming old hat


Sent from my iPhone using Tapatalk

 

[ALLEX]

Anyway. The hospital is becoming old hat

Is it a major hospital? Something is odd... Is this Canada or US we're talking about?

 

[phatkid77]

Yeah. Major hospital as far as I'm concerned.
Kingston Ontario.
Eastern Ontario regional cancer centre.
Teaching hospital. Lots of university of queens attend


Sent from my iPhone using Tapatalk

 

[ALLEX]

Yeah. Major hospital as far as I'm concerned.
Kingston Ontario.
Eastern Ontario regional cancer centre.
Teaching hospital. Lots of university of queens attend

Good.

Hope you get some results soon. Let us know.

 

[Stewie]

Fack sakes! Still no mono results! Her blood coagulates before they get to test it. Even on blood thinners???
So they're taking fresh blood in the AM as it will go to the health unit first thing.
Good note is her liver values keep dropping. Not much. Like 4 points here and there.
Nurse told me what drawing for in the am. I tried googling but must of screwed up
IBV 1 load time??? Or something.

Anyway. The hospital is becoming old hat


Sent from my iPhone using Tapatalk

Throwing some more thoughts out.

This is starting to sound more and more like an acquired autoimmune disease secondary to EBV.

If and when they either confirm or dismiss EBV via
EBV serological panel, I would spark aconversation with her attending. I would ask if this may possibly be antiphospholipid antibody syndrome-
systemic lupus erythematosus, acquired by EBV. Hypercoagulation is very common with antiphospholipid antibody syndrome- systemic lupus erythematosus.

Or possibly warm antibody hemolytic anemia. Dark urine (hemoglobinuria), enlarged spleen and acute hypercoagulation is common with
warm antibody hemolytic anemia.

Hopefully they get to the bottom of this, soon!

 

[phatkid77]

Yeah no kidding. Thanks for you input
Would the ultra high iron be causing the blood to coagulate as well possibly?


Sent from my iPhone using Tapatalk

 

[phatkid77]

And let's hope it's just as simple as mono.
The others sound too serious lol


Sent from my iPhone using Tapatalk

 

[Stewie]

Yeah no kidding. Thanks for you input
Would the ultra high iron be causing the blood to coagulate as well possibly?


Sent from my iPhone using Tapatalk

I'm assuming you're asking about her elevated ferritin? Iron and ferritin are not one in the same, per se. Ferritin is the storage form of iron. When there's an inflammatory state or infection, the belief is of an acute rise in ferritin that is a consequence of cell stress and damage and not that of circulatory iron.

As far as thrombocythemia-
hypercoagulation due to an elevation in Fe (iron). Yes, and this can go either way- it's seen in iron deficiency and iron excess. As for iron deficiency, this is why I don't recommend people to do back-to-back phelbotomies, without checking their overall iron status.

As for would or could this be the cause for your GF's hypercoagulatated state. Very unlikely in isolation considering all that's been previously discussed.

 

[phatkid77]

Yeah. Sorry. Just ferritin I'm aware of
She just got word from docs they suspect mono as one of the tests showed antibodies. Still meeting with infectious disease team as symptoms all over the map


Sent from my iPhone using Tapatalk

 

[ALLEX]

Sickle cell, Stewie?

 

[phatkid77]

Just talk to the infectious disease doctors I guess she has somewhat of a rare occurrence mono with a CMV virus anybody's as well so they wonder about some sort of blood infection might order a CT scan to rule out lymphoma


Sent from my iPhone using Tapatalk