blood disease that grows muscle???

gettnlarge · Dec 22, 2006

just to get a little insight from all of you who know more than me. a lawyer friend of mine from college has some disease that he has to take medication to stop him from growing!! hes freaking huge upper body-wise, and legs are muscular but not huge. i work in the medical field, but dont know of any disease like this. he does not work out at all, and they only gave him a little more than decade to live. hes still alive and doing good though as a lawyer. but hes still afraid to work out to keep from growing. does anyone know of this disease/ disorder? is it like gigantis or the myostatin-blocked baby thing? thanks for the info guys

PHIL HERNON · Dec 22, 2006

YES

gettnlarge said:
just to get a little insight from all of you who know more than me. a lawyer friend of mine from college has some disease that he has to take medication to stop him from growing!! hes freaking huge upper body-wise, and legs are muscular but not huge. i work in the medical field, but dont know of any disease like this. he does not work out at all, and they only gave him a little more than decade to live. hes still alive and doing good though as a lawyer. but hes still afraid to work out to keep from growing. does anyone know of this disease/ disorder? is it like gigantis or the myostatin-blocked baby thing? thanks for the info guys[/QUOTE

I AM PRETTY SURE IT IS A MYOSTSTIN ISSUE. i AM JUST WONDERING WHAT MEDICINE THEY ARE GIVING HIM????????

PHIL HERNON · Dec 22, 2006

SEE

gettnlarge said:
just to get a little insight from all of you who know more than me. a lawyer friend of mine from college has some disease that he has to take medication to stop him from growing!! hes freaking huge upper body-wise, and legs are muscular but not huge. i work in the medical field, but dont know of any disease like this. he does not work out at all, and they only gave him a little more than decade to live. hes still alive and doing good though as a lawyer. but hes still afraid to work out to keep from growing. does anyone know of this disease/ disorder? is it like gigantis or the myostatin-blocked baby thing? thanks for the info guys

THE GRASS AINT ALWAYS GREENER.

alan1973 · Dec 23, 2006

http://www.msnbc.msn.com/id/5278028/

Kahn · Dec 23, 2006

Alan, that article is 2.5 yrs old. I'd like to see the kid now. I wonder what they're doing with him.

alan1973 · Dec 23, 2006

there are companies that make so-called myostatin bolckers, but they say the same thing, you need to take the pills for a long time.
and of course the docs are down-playing their effectiveness. the blockers are made from an algae (cystoseria[or cystoseira] canariensis). I would thing that the body would break it down before it even hit the blood stream with the ability to do what it says it should.
I wonder if innovative-research, propeptides.com, or chemoneresearch would be interested in following up on this topic.

alan1973 · Dec 23, 2006

Kahn said:
Alan, that article is 2.5 yrs old. I'd like to see the kid now. I wonder what they're doing with him.

he seems to have dropped off the radar in 2005.
"It can be produced in genetically engineered E. coli and is available for sale. Johns Hopkins University owns the patents on myostatin."
-http://en.wikipedia.org/wiki/Myostatin

Conan21 · Dec 23, 2006

WOW

I thought that kid in Germany was the only person who had this mutation?

So why are they only giving him a decade to live? what damage is it causing to his body? there are alot of "big" people in this world.

gettnlarge · Dec 23, 2006

PHIL HERNON said:
THE GRASS AINT ALWAYS GREENER.

definitely true. hes had an interesting time with it. i need to find out what the name of the drug is that hes taking.

thanks for all the info so far. by the way hes only about 5-11 tall. i was just reading an old article on here about the whole myostatin baby thing and it made me wonder if my friend was in the same boat.

gettnlarge · Dec 23, 2006

Conan21 said:
I thought that kid in Germany was the only person who had this mutation?

So why are they only giving him a decade to live? what damage is it causing to his body? there are alot of "big" people in this world.

not real sure about why exactly they only gave him a SET time to expect to live, maybe if the drug or drugs didnt help him. this may be a different thing compared to the baby. i guess ill have to look him up and ask him--didnt think i would be so broad a spectrum of possibilities for something like this. thanks

bgmke7 · Dec 23, 2006

gettnlarge said:
not real sure about why exactly they only gave him a SET time to expect to live, maybe if the drug or drugs didnt help him. this may be a different thing compared to the baby. i guess ill have to look him up and ask him--didnt think i would be so broad a spectrum of possibilities for something like this. thanks

his disease is probably causing alot more to grow than just his muscles.his heart is probably whats going to give out.

KillerStack · Dec 23, 2006

Couldn't it be a pituitary thing, like acromegaly? Maybe they stopped it in time so he doesn't show the features of acromegaly. Overproduction of GH is definitely unhealthy; causes diabetes, muscular weakness etc.

Or did they say the disease specifically made his muscles grow?