I’ve been on a treatment card IVIG that’s pretty much removed all the pain I had before. For 5 days every month I do infusions that last 3 hrs and it keeps my body working pretty normal until my Neuromuscular Dr decides what the next steps are going to be. But I’m happy to say that this treatment has keep me away from having to take immunosuppressants and painkillers of any kind.Have you looked into low dose naltrexone? I don't know a great deal about your specific condition, but my wife has hashimotos, plus there may be something else undiagnosed (tested high ANA earlier this year).
Anyway, the LDN helps her inflammation, and she noticed the difference when she ran out for a few days.
I myself have been dealing with major spine issues, no surgery yet, and epidurals haven't been helping. I am not on any prescriptions for it, but I threw in LDN (ordered from all day chemist).
I have good days and bad days. But at one point, I was thinking the LDN wasn't doing much, so I stopped it for a few days. The pain came back hard. So I'm just sticking with it... it does have other health benefits, is dirt cheap, and I think it is keeping me from having to raise my (very low) dose of kratom that I use for pain management.
Anyway, hope that info is of some use.
That's cool man, I had not heard of IVIG until your original post. Is it specific to that particular rare autoimmune disease? Or useful for others? I like to know if there is more cutting edge shit that my wife could benefit from.I’ve been on a treatment card IVIG that’s pretty much removed all the pain I had before. For 5 days every month I do infusions that last 3 hrs and it keeps my body working pretty normal until my Neuromuscular Dr decides what the next steps are going to be. But I’m happy to say that this treatment has keep me away from having to take immunosuppressants and painkillers of any kind.
It’s not specific to mine. I’ve heard of people doing it for lupus and other things like that. Pretty much it’s a smart way to confused the bodies auto immune cells. They infuse your body with foreign immunoglobulin and it’s makes the Auto immune cells attack the foreign IG instead of your cells or in my case muscle tissue. So it can work for a lot of things. I’m lucky to Live most of the time in Los Angeles so I was able to get a DR from a big university hospital.That's cool man, I had not heard of IVIG until your original post. Is it specific to that particular rare autoimmune disease? Or useful for others? I like to know if there is more cutting edge shit that my wife could benefit from.
It is expensive as hell as well and not something you are going to pay out of pocket without insurance coverage. I had to take a bunch of infusions with it as part of a protocol along with plasmapheresis when my kidney transplant was in antibody mediated rejection back in the end of 2019.That's cool man, I had not heard of IVIG until your original post. Is it specific to that particular rare autoimmune disease? Or useful for others? I like to know if there is more cutting edge shit that my wife could benefit from.
Good to know, thanks. Fortunately, low dose naltrexone is cheap and seems to be effective. She was dealing with a lot of shit this past year. She got covid in January, and that set off some scary heart shit and other issues that have been plaguing her since then. At one point, lab tests suggested lupus or scleroderma, but that wasn't conclusive and doesn't seem likely now. Freakin weird.It is expensive as hell as well and not something you are going to pay out of pocket without insurance coverage. I had to take a bunch of infusions with it as part of a protocol along with plasmapheresis when my kidney transplant was in antibody mediated rejection back in the end of 2019.
Yeah it’s a very expensive treatment, I think my nurse told me it was 15k a bag. So it’s definitely something that needs to be approved from a Dr and then approved by insurance. It’s such a random treatment that my Specialist had to write a big letter/presentation to my insurance company to prove that I needed it and it was the only and best option. it pretty much took me from feb 2022 to November 2022 to get the condition figured out and get on a treatment plan.It is expensive as hell as well and not something you are going to pay out of pocket without insurance coverage. I had to take a bunch of infusions with it as part of a protocol along with plasmapheresis when my kidney transplant was in antibody mediated rejection back in the end of 2019.
Coming along nicely! Keep up the hard work!Tightening up a big more !
I confirm, you're a goddamn freak and I'd like to look like you when I'm your ageI have had ulcerative colitis for over 10 years now. I have made great gains. I'm 5'7 up over 240lbs and pretty lean. (Not posting pics in forum) I have a prior aas charge and I'm a little over cautious. But Luki and Cage have seen pics and will vouch im sure. Anyway point is you can still have a productive bodybuilding career. Just keep pushing brother!
Yessir,, BIG1512 is a beast for sure!!!! Wasn’t aware of your UC diagnosis. Bravo!!!!!I have had ulcerative colitis for over 10 years now. I have made great gains. I'm 5'7 up over 240lbs and pretty lean. (Not posting pics in forum) I have a prior aas charge and I'm a little over cautious. But Luki and Cage have seen pics and will vouch im sure. Anyway point is you can still have a productive bodybuilding career. Just keep pushing brother!
Yeah had it for years now. I take my script meds and honestly thc has worked bettet then anything for me. I do a sativa during the day so I don't get tired and then a indica at night. It also helps my appetite since sometimes my appetite goes down because of the colitis. I remember being diagnosed and thinking this is it for me. But I never quit and just found what worked for me.Yessir,, BIG1512 is a beast for sure!!!! Wasn’t aware of your UC diagnosis. Bravo!!!!!
Cage