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Heart Failure - Road to Recovery

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so called the doc yesterday and still no end-results. This shit is ridicolous.
apart from that i am currently sick with some fever (feeling hot, down, sick, heart rate is up almost 15 points etc..).

**EDIT**

apart from that, i am doing quite good. vest is on, doing my sports without the "heavy taxing excersises". Cardio is AM cardio 2on 1 off. Lifting depends on feel, most i did until now is 5 times a week
 
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maldorf

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It's unbelievable that you haven't seen the doctor to discuss your results. This is bordering on malpractice. If something happens to you, your family should sue. So much for socialized medicine.

Hang in there. The covid situation added to your problems makes things even worse. Which vaccine did you get? I got both of my Moderna shots back in March/April.

Just got home last night from my surgery. I've got my new defibrillator/pacemaker in place. Hopefully you won't have to worry about getting one.
 

maldorf

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How long, how many weeks, has it been that you have no results and meeting with your doctor?

It's unbelievable.
 

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How long, how many weeks, has it been that you have no results and meeting with your doctor?

It's unbelievable.
it's been 9 weeks now.
i did get biontech. and second shot will also be biontech.
to all problems, my insurance has sent me a letter that they do not extend coverage of the lifevest. have to make some phone calls
 

maldorf

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it's been 9 weeks now.
i did get biontech. and second shot will also be biontech.
to all problems, my insurance has sent me a letter that they do not extend coverage of the lifevest. have to make some phone calls
Wow, no more coverage on the vest. I hope you get ahold of someone fast and get that extended right away. Maybe the insurance knocking on your door like this will expedite a meeting with the cardiologist to get your results and a decision on if you need to have an ICD like me.

Chris on here wore one for awhile, but later on no longer did. He ended up dying.
 

maldorf

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Thread on Chris.

 

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so small updates:
1.) Apigenin arrived from UK. Will start it now.

2.) had my "second opinion appointment" today at a really good specialist.
Well, much talk, many tests etc.. End result:
i will on wednesday go to Uni-klinik Heidelberg (big hospital specialised for heart issues etc) for clarification and on thursday 9:30 i will get my katether done. They also want to make a heart muscle biopsys since they assume the non-compaction cardiomypathy. Also, gen tests will follow.
EF was measured at 28% today which is an increase of about 12% in 5 weeks.
Medication was also changed, candesartan removed, Entresto (special medication for heart insufficiency) added and also beta blocker switched to carvedilol
Which apigenin brand did you get from the UK?
 

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Which apigenin brand did you get from the UK?
its from eco-vits, no special brand.
but tbh, not feeling much from it. Next time ill invest more in ubiquinol and go with a higher dosage from it. Ubi is something i really feel a difference between 0mg/200mg/600mg+

about my fever:
turns out my injectable l-carnitine shot in the shoulder was/is the issue. I have an abcess and i dont know how tf it could happen.
I desinfect, the vials i use are amps that i break. sometimes i might touch the inside of the vial with the needle tip but both needle and vial inside should be sterile.
Fever since wednesday, decided to go to doc yesterday again since antibiotics didnt really work.
Turns out i need surgery. got it done yesterday evening, now in hospitla again.

this year sucks hard regarding my "health issues". im getting desperate. Everytime one thing gets better and training/diet is fine again anothr crap arrives..
dunno how long i can take this without going completely mad
 

maldorf

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With your heart being so fragile now, I'd not be injecting anything other than 100 mg/wk test. Don't want any other foreign substances, no more than critical. Personally, I've tried a couple of supplements and they ended up making my arrhythmia worse. Many substances that would have been safe for you before no longer are.
 

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With your heart being so fragile now, I'd not be injecting anything other than 100 mg/wk test. Don't want any other foreign substances, no more than critical. Personally, I've tried a couple of supplements and they ended up making my arrhythmia worse. Many substances that would have been safe for you before no longer are.

Which supplements made yours worse?
 

maldorf

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Which supplements made yours worse?
Recently, within the last 12 months, it was acetyl l carnitine.

There was one or two others many years ago but I can't recall.

Another factor is drug interactions. That's why all supplements say to consult your doctor before taking. With me, the main worry is my Coumadin. Just about everything it seems interacts with it.
 

Needmassquick

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Recently, within the last 12 months, it was acetyl l carnitine.

There was one or two others many years ago but I can't recall.

Another factor is drug interactions. That's why all supplements say to consult your doctor before taking. With me, the main worry is my Coumadin. Just about everything it seems interacts with it.

Interesting, always heard it was good for heart health
 

maldorf

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Interesting, always heard it was good for heart health
Yeah, me too and that's why I took it. After getting the arrhythmias, I searched on the internet and found support for what happened to me. So many things, even OTC supplements affect people with pre existing conditions.
 

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so i got released from hospital again and have to take antibiotics now (clindamycin). I hope i tolerate that one good too.
Surgery was quite okay, it was shocking for me to hear that they pulled almost 100ml of pus out of my shoulder.
How i got the abscess - no clue. The only mistake i might have done was not to wait 60s for the desinfection water to work (they
told me one should wait 60s after desinfecting which, i have to admit, i have not done.. more like 10-15s)
No pain medication needed since pain is almost non existant, function is there, i can move my arm quite well.

now i might have to change my appointment for my important echo since i dont want to go their "weakend" by surger and antibiotics. Ill probably put it 10 days in future
 

maldorf

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so i got released from hospital again and have to take antibiotics now (clindamycin). I hope i tolerate that one good too.
Surgery was quite okay, it was shocking for me to hear that they pulled almost 100ml of pus out of my shoulder.
How i got the abscess - no clue. The only mistake i might have done was not to wait 60s for the desinfection water to work (they
told me one should wait 60s after desinfecting which, i have to admit, i have not done.. more like 10-15s)
No pain medication needed since pain is almost non existant, function is there, i can move my arm quite well.

now i might have to change my appointment for my important echo since i dont want to go their "weakend" by surger and antibiotics. Ill probably put it 10 days in future
Sorry to hear about the trouble. I hope that you don't do any more injections. Are you still wearing the vest?
 

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Sorry to hear about the trouble. I hope that you don't do any more injections. Are you still wearing the vest?
yes, vest is still on me and i have it till octobre, thats why i dont have issues to postpone my appointment 2 weeks to 16.09..
right now ive decided to stop all injections and go back on my gel until my cardiologist appointment and results are there.
I really dont like the gel due to its smell but better be safe than sorry. After my cardiologist appointment i will get back on 50mg e3d injection.
 

maldorf

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yes, vest is still on me and i have it till octobre, thats why i dont have issues to postpone my appointment 2 weeks to 16.09..
right now ive decided to stop all injections and go back on my gel until my cardiologist appointment and results are there.
I really dont like the gel due to its smell but better be safe than sorry. After my cardiologist appointment i will get back on 50mg e3d injection.
So you were able to get insurance to cover the vest till then. I was worried about that.
 

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So you were able to get insurance to cover the vest till then. I was worried about that.
i didnt have much to do.
The company Zoll who got the recepit from my doctor for it managed everything.
Ive phoned my insurance first, they told me that me and or Zoll should go into revision and then ive called Zoll.
They said i dont have to worry about paying anything besides my own part for the vest and the rest will be managed by them
 

maldorf

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i didnt have much to do.
The company Zoll who got the recepit from my doctor for it managed everything.
Ive phoned my insurance first, they told me that me and or Zoll should go into revision and then ive called Zoll.
They said i dont have to worry about paying anything besides my own part for the vest and the rest will be managed by them
Man, I bet you'll be glad to get rid of that vest. One way or the other you can finally be rid of it.
 

maldorf

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How are you doing now? Looks like your next appointment is in about 5 days. Hope you are feeling ok. Im doing much better since I got my new pacemaker. I guess your rhythm didnt get messed up since you did not have a heart attack?
 

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