muscle96ss
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- Jun 17, 2002
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My condolences brother, we are here for you.
Can i respectfully ask what quality of life changes you endured that make dialysis and kidney transplant not worth it for you?
I ask as a clinician myself, this kind of information really helps me improve myself as a professional to help patients better, but also for the guys on here to learn more about the condition and consequences. This kind of first hand experience is invaluable to us.
I'm not sure how to answer that question considering it has been over 7 years of continuous complete hell. My body reacts/responds very differently than most to normal medical protocols. Our medical system sucks and is so stuck on "standard protocols" that they don't use logic or common sense to foresee problems or know how to adapt when they occur. In addition, the doctors do not communicate with the patient and do not listen to them. While a large part of my experience was at Mayo Clinic in Phoenix, it was the same at every hospital/doctor outside of there as well; so it was more widespread than just a bad doctor or 2. My wife created a FB page and started documenting my journey in 2018. If you are interested, the link is:

A Kidney for Leigh
A Kidney for Leigh. 468 likes. Received the amazing gift of life with a living kidney donation on 2/13/19
If you have the time to read it, everything I said will make a lot more sense and you can see what the quality of my life has been like.